This week is an opportunity to move forward following Thursday’s Best Interest Meeting with three meetings already scheduled:
Tuesday: Maureen’s Care Coordinator is here with an Occupational Therapist to give us advice on how to make our home a safer and more stimulating environment.
Wednesday: I have a meeting with a Carer Support Worker to explore how she might be able to make my load a little lighter.
Thursday: I have a meeting with my Admiral Nurse as the start of a schedule of fortnightly meetings to review my role as Maureen’s Care Partner. These meetings will offer the support/supervision that I have been seeking.
It also seems likely that I will need to meet our Key Worker at some time during the week for a progress report on the arrangements for Maureen’s care during the first of my long weekend breaks. The thought of a break in a couple of weeks will hopefully keep me going as Maureen’s presentation becomes even more challenging by the day!
Glad to hear the Best Interest meeting went well and you will be able to have some regular respite. Sounds like you’re having a busy week of meetings. That was one of the things I found exhausting.
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The availability of carers to support Maureen at home is still in the balance as it always has been. It is possible that Respite in a Care Home might be the only option but I sincerely hope not. Attending meetings is hardly a break from my caring duties and it is something I need to seek to avoid in the future.
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