Dementia: Changing Into A Lower Gear

Image result for Changing Into A Lower Gear for Dementia pictureDecided to post this at 3 am just to take a break from hostilities and recriminations with Mrs Dementia in full flow!

There is little doubt that I need to review my approach to supporting Maureen as her functional and cognitive capacity continues to decline.  To use a motoring analogy I need to change into a lower gear as the hills from dementia get steeper to climb. Relatives and friends also need to review their approach to supporting someone who is really struggling at this moment in time.

Maureen’s awareness of her condition has been heightened by conversations with her Care Coordinator on Monday.  Yesterday, she lamented that she was getting worse and seemed very downhearted. During the day she had moments of abject confusion: completely lost in her surroundings along with frequent time-travelling.  I didn’t help matters by encouraging a visit to a relative where the conversation flowed at a rate that was beyond her capacity to absorb.

Last night she was reluctant to go to bed and is talking incessantly into the early hours.  Maureen tells a sad tale of a life full of disappointment and lack of fulfillment.  I have recorded some of her rambling to share with professional staff.

It is fortunate that I have a scheduled meeting with my Admiral Nurse and the manager of the Home Treatment Team this morning.  We all clearly need to review our approach to supporting Maureen as dementia marches relentlessly on.

 

 

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About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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6 Responses to Dementia: Changing Into A Lower Gear

  1. dbb34 says:

    I feel so sorry for what is happening. I often try to visualise how confusing the world must be for those with Alzheimer’s, especially those like Maureen who have some understanding of what is happening. It is so hard to reassure them isn’t it. My thoughts are with you both

    Liked by 2 people

  2. Remember Me says:

    We’ll get through this challenging time. We are fortunate that there is always lots of support on hand.

    Liked by 1 person

  3. AmazingSusan says:

    This process is not in any way linear and it’s a mistake to try to understand it in that way. It’s random, and challenging times don’t go away necessarily, they may be resolved in the moment and resurface in the next.

    Liked by 2 people

  4. Remember Me says:

    We have to ride the challenges and resist the medicine cabinet.

    Liked by 1 person

  5. anniegoose says:

    paul – i hope you didn’t think that things were going to improve?????

    {{{{{{{{{{{{{hugs}}}}}}}}}}}}} for both of you

    Liked by 1 person

  6. Remember Me says:

    We are both optimists and there is always the possibility of improvement. The prospect of neuroplasticity is there for some lucky beings: we are seeking membership of that clan! We don’t want to stand with those who just view dementia as a progressive condition!

    Like

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