Dementia: ‘I’m Still Winging It’

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If my performance as a Care Partner for Maureen was being observed by football supporters I’m sure they would be singing : ‘you don’t know what you’re doing’.  This familiar retort when the referee makes a bad decision would ring out on our terraces here on many a day.  As the man in the middle, I could argue that I have my badge, an NVQ Level 2 in Dementia Care, and I’m not going to offer the whistle as I know my wife better than anyone.

Although I’m qualified to care for Maureen there are shortcomings within my skill set.  Throughout my working life, I have predominantly been a Group Worker even though my Initial Training included Counselling.  More importantly, I have not had a supervised placement in this field or an opportunity of shadowing an experienced practitioner.

Time is never on your side when you are a Care Partner for a loved one with dementia.  You may feel you have got the hang of it until one day you are caught out as the goal posts have shifted .  I sometimes feel I’m not keeping up with the game as Maureen’s presentation throws up new challenges.  It is fortunate that telephone advice is so readily available.

In the 90’s I sought support from a therapist  when I was ridden with guilt following divorce and  separation from my children.  Jenny used Transaction Analysis to help me put my situation into Eric Berne’s framework – always advising me : ‘if something isn’t working – try something else’.  When the going gets challenging here it is one thing I try to keep in mind .  Unfortunately, I’m far from match fit at the moment with a chest infection taking its toll but those antibiotics will kick in soon and I’ll be BACK!

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About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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One Response to Dementia: ‘I’m Still Winging It’

  1. anniegoose says:

    get well soon – did you end up with pneumonia???

    stay strong

    Like

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