Dementia: Running Out of Gas

Image result for out of gas pictures

Maureen and I were both running on empty yesterday afternoon as we tried to catch up on an unproductive morning.  None of our plans for the morning came to fruition as Maureen eventually gave up trying to find comfortable clothing and slept off her frustrations.

Playing catch up in the afternoon led to exhaustion and when we got home we both took to our downstairs beds for a couple of hours. Siestas seem to help us regain our energy but we are yet to experience a satisfactory outcome from any attempt to provide significant respite. 

I’m meeting Officers of the Clinical Commissioning Group this morning to raise concerns about Maureen’s experience in Ladysmith Road Care Home.  The CCG’s provision of  dementiaservices through NAViGO has recently received deserved national acclaim.  At today’s meeting I will register our thanks for the excellent support we have received from the local set up.  However, I also want to raise a number of points about how respite at Lady Smith Road had a negative outcome for both of us.

Hilary will be here this morning: she is a mature and very capable carer.  I’m hoping that she can make some sort of impact on the ongoing clothing crisis. 

Advertisements

About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
This entry was posted in General and tagged . Bookmark the permalink.

4 Responses to Dementia: Running Out of Gas

  1. AmazingSusan says:

    Thanks for speaking out on unsatisfactory services, you’re doing great work.

    Like

    • Remember Me says:

      Hi Susan good to hear from you. I say it as it is: praise the good and raise concerns about things that are not right. Be interesting to see how I’m received this morning. I’ll keep you posted.

      Like

  2. Let us know how you get on x x

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s