Hello I’m Paul welcome to my blog.
This is the story of our journey: an honest account of our lives after Maureen's diagnosis of dementia following stroke in February 2014.
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Monthly Archives: June 2016
I could not have asked for more appropriate support than I received yesterday. When Gail, our carer, arrived she was so shocked by Maureen’s presentation that she advised me to get her ‘checked out’. She hadn’t seen Maureen for a … Continue reading
The phone lines were hot yesterday as I kept in touch with professional staff providing ongoing support. I eventually decided not to seek additional ‘Boots On The Ground’ as Maureen’s focus was changing as the day progressed. It was helpful that … Continue reading
When you are as tired it is helpful to see a reminder of the basics of being a Care Partner. I am very grateful to Daz Smith for sharing this on LinkedIn:
Yesterday I received excellent support from Social Services, Admiral Nursing and the Home Treatment Team. Today I will be taking up the offer of the HTT to put ‘boots on the ground’. When lines open I will be asking them … Continue reading
I get a little tired of people telling me ‘I’m doing a great job’ as a Maureen’s Care Partner. The following post from the Alzheimers’ Reading Room points out that words are cheap: ‘It is not unusual for caregivers to tell … Continue reading
Carers Assessment Needed Maureen’s presentation continues to become increasingly challenging. She is now very distressed if I am out of sight; often believing that she has been locked in the house and left alone. On occasions she will forget where … Continue reading
Geoff Lynne’s ELO just lifted me after a difficult start to the evening. Seeing them at Glastonbury helped me to remember some good times in my life at a time when I needed an escape from the difficulties here. As … Continue reading
I realised that any attempt to attend the Armed Services Weekend in Cleethorpes would be futile. The resort was expected to be very busy with large crowds expected: the opposite of what you need when you have dementia. Maureen had … Continue reading
Originally posted on george rook:
So GPs have finally said there’s no point in a person knowing what’s wrong with them. Oh, yeah, I know you’ve got cancer but it’s a type we can’t cure, you’ll die in three months,…