Dementia: ‘Our Own Peculiar Way’

We all have our own ways of coping when dementia is impacting upon our lives.  Maureen’s approach to the condition is her choice: it is her life.  If she wants to continue with her belief that she: ‘used to have some problems with her memory’; that is her right.  What would I gain by trying to ram home that she has dementia, and she should listen to the ‘experts’ on how to conduct her life?  Kate Swaffer has some harsh words on that approach and labels it ‘prescribed disengagement’.

I also have my own approach to being a Care Partner.  It has been fashioned by reading and listening to what others have to say about the condition.  I am greatly indebted to the many contributors to Talking Point who share their experiences so openly: they are the experts.

So Maureen and I both have our own approach to our journey with dementia.  That is where Willie Nelson and EmmLou Harris come in because their rendition of ‘My Own Peculiar Way’ opens the door on a good focus for the weekend, and these dark nights.

If my ballroom dancing memory serves me right Willie and EmmyLou are singing to the tempo of a Rumba.  Maureen and I fashioned a good version of Rumba in our ballroom dancing days.  As I have mentioned before we have several ‘dance floors’ in the house.  We also have DVD’s to remind us of our little routines.  Guess what I will be suggesting to shorten these dark nights?

What have we to lose by continuing in our own peculiar way?

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About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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