Dementia is not cancer

I find George’s blog very thought provoking. He articulates my own thoughts on how dementia is treated in this country. The challenge for me is how to help Maureen and I to have a life with dementia in this climate. I will address that issue in Monday’s blog. My method will be quite simple; to develop an Action Plan as a Care Partner.

george rook

People with an early, timely diagnosis of dementia have time to make the best of their lives. They can plan finances, power of attorney, a care and living plan…

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Then what?

There is still precious little support provided across the country post diagnosis, until crisis.

Many providers and councils say they provide care co-ordinators for all people with a diagnosis of dementia. But we know they usually don’t. (Initial findings of a survey by ADASS in the West Midlands). There are a few proud exemplars, far between.

There are excellent peer groups scattered across most areas but few people with dementia get to them.

People with dementia, and remember it can happen young, are generally left to their own devices. They lose jobs. They meditate on their forthcoming decline. They become depressed. They lose social contact and community interaction. They may descend into living with misery.

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Yes, we talk about…

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About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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